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B12 deficiency at the heart of the matter
This little fella spent a long lime in hospital as a child following a diagnosis of Perthes disease (Legg-Calvé-Perthes disease). Perthes is a childhood hip disorder caused by a disruption of blood flow to the ball of the hip joint. By the time he was 30 years old he...
Understanding what it feels like to be B12 and folate deficient
Over the weekend I was ambushed by a sickness bug, I was in pain, exhausted and miserable with a screaming headache - however I knew it would pass and that I would be free of feeling like a rag doll in a matter of days. It occurred to me that what I was experiencing...
Dumb and dumber with NHS money to burn.
As usual, I want to say that I acknowledge there are some clinicians who treat B12 patients correctly, this sorry tale below only refers to those who don’t. See below another shocker of a letter sent to a B12 deficient patient whose doctor is perhaps hard of hearing...
B12 and Thyroid conference 2015 – an enormous success, incredible feedback and a game changer!
I want to say a huge thank you to the fantastic four; Sally Pacholok, Lorraine Cleaver, Umahro Cadogan, and Dr Malcolm Kendrick - who all have more than one thing in common; A passion for educating and exposing truth, unflappable tenacity and humour! Sally Pacholok,...
“There is no shame in not knowing; the shame lies in not finding out.” Russian Proverb.
At some point this dam will have to burst, there are just too many of us shouting about our undiagnosed or under treated deficiencies to be ignored for much longer. Many of us find our way to support groups because our doctor's have a profound lack of knowledge...
B12 & Thyroid Conference – Wilful blindness, apathy or a case of short arms, deep pockets?
I am sorry I haven’t been here for a while, I have been arranging a conference on B12 deficiency, thyroid disease, genetics and data. (www.b12deficiency.info/conference) Anyone who reads this blog knows how difficult it can be to access correct treatment and...
B12 Awareness in 2015
The past twelve months have been filled with a schedule of hard work for Sally Pacholok. The long awaited film based on Sally’s life by Elissa Leonard and a new book of childhood B12 deficiency, add up to a momentous year. The world premiere of the film will be...
Happy New Year from www.B12deficiency.info
For those of you who don’t know www.B12deficiency.info was created 15 months ago and is mainly run by me, Tracey, working from my home in Loughborough, UK. I am wholeheartedly supported by my husband Damian and our lovely rescue dog Jasper! Damian and I...
The pernicious ignorance of B12 deficiency in patients with poor mental health.
Despite the general misconception that B12 deficiency only affects women over 60, this condition does not discriminate. It is those who train our health care professionals and consequently our health care professionals who do. The neuropsychiatric symptoms of B12...
‘Sally Pacholok’ – A film based on the true story of an ER nurse who takes on the medical establishment when she uncovers an epidemic of misdiagnosis.
It is with great pleasure that I post this Press release below for the film ‘Sally Pacholok’. The feature film, based on Sally’s life, has been entered to the Sundance Film Festival and will make its UK premiere in cinema’s next year. Thanks to the drive and foresight...
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