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Dying to breathe
Three weeks ago I thought I might be taking my last breath. I had a virus which coupled with whooping cough (that I caught back in April), meant that each breath I took felt like trying to push a train uphill, through a very, very tight tunnel. Thankfully, excellent...
The North Wales Branch of The Royal College of Nursing leads the way!
On October the 2nd 2017 the first North Wales RCN CPD Conference, included B12 deficiency thanks to Dr Marjorie Ghisoni. This fantastic CPD Conference offered a range of inspiring talks for the nurses in attendance. I was honoured to be speaking on a subject I'm so...
Thanks to all who supported the B12 Pop Up Café!
Who doesn't love a cuppa and a chat? Years ago Sally Pacholok made B12 Awareness Day the 23rd of September and we marked the occasion in Leicestershire with a B12 Pop Up Café. Getting together and sharing experiences makes such a difference to peoples lives. It is...
Are your vital B12 injections being stopped? FREE help options here….
If your treatment is being restricted or stopped altogether, hopefully there will be some help options for you here. The Letters.... There are letters being sent out to patients, some of whom have received B12 treatment for donkey's years, which announce that they...
A serum B12 level can’t tell you how a patient is feeling, only the patient can, but why is no one listening?
Is your doctor allowing you to sink or swim? How are you feeling? Are your symptoms improving? Do you need more frequent B12 injections......? These questions are very rarely asked of B12 deficient patients regarding their treatment. Too many patients remain 'seen'...
B12 deficiency, the fantasy & the reality
The BBC came to the first day of the 2016 conference and as part of their report they needed to get a 'balanced' view of B12 deficiency so they interviewed a GP. This slide below shows the statement provided. As you can see, this GP from the RCGP (Royal College of...
A helpful Christmas tip for B12 deficient patients?
Some of you may know that this blog, the website www.www.b12deficiency.info Facebook and Twitter pages are run by me, Tracey Witty. Others write to the 'B12deficiency.info team' incorrectly thinking that the website is a huge concern with a team of...
‘The tank’s empty but I can smell petrol so you have 90 days more driving ahead of you’ …..
If this advice were given by a garage we’d know they were kidding - but a similar instruction is given in the UK to too many B12 deficient patients regarding their treatment. NICE and BNF Guidelines advocate a maintenance dose for patients with neurological symptoms...
I met Jane Ellison MP in Parliament last week…..
Jane Ellison, Public Health Minister and two advisors kindly spent time listening to the issues facing B12 deficient patients when I met her along with my own, very supportive MP, Nicky Morgan. I chose to petition Jane as her ministerial responsibilities include;...
When you can’t remember where you live, or who loves you…..
Our poster boy Jasper has been showing the signs of his advancing years. He was a rescue so we can't be sure how exactly how old he is, but he's at least fifteen. His eyesight and hearing have been deteriorating for a while so we clap to get his attention. People...
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