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Sep 29, 2013 | Raising awareness | 5 comments

Dear all

I was diagnosed with B12 deficiency in 2012 and the realisation that clinicians are taught very little about this very common condition dawned swiftly. I wanted to make a difference to people like me who were searching for correct information and help. Please see my mission statement.

Since my own diagnosis I have driven my family and friends round the twist – badgering those with symptoms to get tested. If someone breaks a finger nail, they’ll cheekily ask me if I thinks it’s B12 deficiency. The following line from Sally Pacholok’s book “Could it be B12? An epidemic of Misdiagnosis” confirmed that my behaviour was normal!- ‘your families will tease you about your over zealousness in educating them about the dangers of B12 deficiency’ – I am pleased to report that those who did get tested and were found to be deficient are now driving their family and friends round the twist too.

One particular friend, Laura inspired me to create this website, I think she wanted me to shut up! I wanted to raise awareness about B12 deficiency and everything I was doing was falling on deaf ears. I am a lay person and each time I would be asked – ‘are you a medic’? Nobody really was interested in the early days.

I hope my website provides the vehicle to help us all access great support and information.

I want to thank Laura for inspiring me, Ryan for his excellent typing skills, and my fantastic husband Damian for building the original website and for allowing me to bore him about B12 everyday!

Please see the petition which aims to make B12 injections available OTC in the UK.

Best wishes, Tracey

www.b12deficiency.info and if you share the information, please be kind enough to credit the site.

If I’ve helped please consider buying me a coffee/leaving a virtual tip.
Doing this helps me to offer this free website to you and others around the world.
Thank you, I really do appreciate it.


  1. Kim Young

    You’re a truly inspirational lady Tracey. You got me through the traumas. Thank you! Kim Young

  2. Michelle Cheatley

    This is the one & only website I recommend to anyone, personally or on support groups. I refer to it as ”the one stop website”

  3. Niky Gwilliams

    Since being diagnosed last year with b12 deficiency I have had struggles after struggle with my gp all I get is your blood test are in range you are fine I have told them that blood tests results are skewed once supplements have begun and as for the co-factor forget it. I’ve had over 12 weeks off work due to not being able to function properly from pins and needles to the most recently collapsing 11 times in a week to be told after a ecg your fine. Given up on the doctors help

  4. Barbara Bradbury

    After PAS, Chandy, and other sources and books, since 2015, I do admire your persistence and research and hope your PhD is awarded with great distinction. In just 24 hours of reading and after a relapse due to unavailability of Hydroxocobalamine for a month , and several comorbidities including porphyria, VP, I have learnt or been confirmed in my private research of so much about PA. One month of missing injections has meant a return to a state I was in in 1986. I now recognise there have been several of these, which must have been due to interference with treatment, where I have attributed the pain, brain fog, neuropathy and paralysis to physical accidents. Thankyou for all u are doing from down under .


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