What, no loading dose?I have been helping someone in the county of Lincolnshire to access treatment and I can say with all honesty that it is THE most difficult and frustrating case I have ever taken on. I have been told on two separate occasions that GP's in this...
Patients with a diagnosis of PA (pernicious anaemia) do not experience a more excruciating pain or a different kind of damage than someone who has a diagnosis of B12 deficiency due to another cause. Both B12 deficiency and PA cause damage to the protective fatty...
If your treatment is being restricted or stopped altogether, hopefully there will be some help options for you here. The Letters.... There are letters being sent out to patients, some of whom have received B12 treatment for donkey's years, which announce that they...
Is your doctor allowing you to sink or swim? How are you feeling? Are your symptoms improving? Do you need more frequent B12 injections......? These questions are very rarely asked of B12 deficient patients regarding their treatment. Too many patients remain 'seen'...
If this advice were given by a garage we’d know they were kidding - but a similar instruction is given in the UK to too many B12 deficient patients regarding their treatment. NICE and BNF Guidelines advocate a maintenance dose for patients with neurological symptoms...
The question you will be asking of your GP after reading this is 'show me the proof that 3 monthly injections are all I need'. The biggest problem B12 deficient patients face once they've achieved a diagnosis is desperate under treatment. Our maintenance dose is...
Vets have a greater knowledge of B12 deficiency than the average GP. Jasper wouldn’t be misdiagnosed with fibromyalgia, CFS, MS, or bipolar (etc), in place of B12 deficiency. He would not be given antidepressants for B12 deficiency induced depression. He wouldn’t be...
It is rare that I am lost for words - however, I expect after reading this, you might be struggling too. The below text is a summary of a patient’s experience just last month. I am paraphrasing but the message is very clear. The quality of life of B12 deficient...
Please note - I do know that some doctors know how to treat B12 deficiency and pernicious anaemia excellently, sometimes there is a lovely surprise when a member of Pat Kornic’s life saving support support group reports how well they are being treated by their doctor....
Do you have a diagnosis of CFS or ME? It is widely documented that chronic fatigue is a symptom of B12 deficiency, it is also known that B12 deficiency can be misdiagnosed as CFS and ME. It is also known that macrocytosis does not need to be present for the person to...
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