A mother’s message

Nov 22, 2022 | Children, Education, Misconceptions, Raising awareness | 4 comments

A lovely family have agreed to share their story as it gives such an important message. This is the email I received from Anna…

Dear Tracey I hope this email finds you well. I just wanted to say thank you so much for your work and your fantastic website.

My son has been under investigation with the pediatrician since he was 8 weeks old. He’s had hundred of blood tests, MRI scans, 24 hour urine and no one has ever been able to identify the cause of all his issues. He had physiotherapy for his hypotonia and developmental delay. As well as speech and language therapy to help him learn how to eat solid food as he could only consume puree.

He is now a year old. And a day before his birthday we finally got a call. A metabolic specialist found he has a B12 deficiency along with high homocysteine and MMA. He also has elevated creatine kinase.

His treatment started immediately, the next day. But, my partner and I were completely in the dark. We didn’t know what B12 deficiency meant. We didn’t know if it was just something they happened to find or if it was possibly the cause of all his issues. The doctors gave us no information.

I tried researching for a while. Only finding information on adults or teens with the deficiency. I couldn’t find anything that could relate to a baby. Until I came across your website. What an eye opener. We noticed our son had every single sign and symptom listed for children with B12 deficiency.

Unfortunately we don’t know what the future holds for our son. But I thank you for educating me and my partner when even the doctors couldn’t.

We have shared your page with the nurses in the childrens unit at our local hospital as well as with the health visitors. In hope they can potentially save a child from life long struggles. None of them even knew about B12 deficiency in kids, which shocked me.

We are so greatful to have come across this information when we need it most. If only we knew about the symptoms of paediatric B12 deficiency before hand, we could have pushed for tests long ago.

Kind regards



You’ll notice there is both sadness and kindness in Anna’s communication. There is no anger and blame about the waste of time or about the fact they were still left in the dark even after their son was diagnosed.

They are still having to do all the research and in turn help to educate the health professionals involved in their son’s care.

I know many who will read this will probably feel anger about the unnecessary pain and worry this family have experienced and may even have similar stories. My hope is that the work this loving couple have done in researching vitamin B12 deficiency for their son is not in vain. That the delay in his diagnosis touches some of the health professionals who have been given links to the site. That they can educate themselves and make a difference to others who find themselves in this situation.

My heart goes out to this family and to all who have struggled in this way.

Lessons from Anna’s message

For a tiny baby to have endured hundreds of tests. For it to have taken all 364 days of this little one’s life until someone found the cause and began treatment, is a tragedy that could have been so easily avoided.

Anna’s moving email details the enormous gaping hole which remains in the medical system. This will continue to lead to the potential for permanent harm of children (and adults) whilst health professionals are not educated properly, if at all, about vitamin B12 deficiency.

The idea that vitamin B12 deficiency only affects women over 60 still persists today within many disciplines of medicine. This fundamental misconception needs to be addressed. If you’re a doctor and you’re not looking for something, then how will you find it? 

Anna’s experience with her son also starkly highlights what is missing from teaching at school. Every day those of us who now have knowledge of this complex vitamin and how a lack of it affects the mind and body, will find people who say… “I have never heard of it…what is it?..What causes it?..What are the symptoms?…What foods does it come from? “

Even though I knew my grandma had B12 injections when I was young, I had no idea about what B12 deficiency was and how it occurred.


School education

If thorough education of nutrition started in school – (not just learning about scurvy in history through explorers journeys at sea) – we’d all be in a much better position. There are plenty of subjects in school curriculums which are never used. I can’t recall needing sines, cosigns and tangents at all. I would have loved to have learned about the fibonacci sequence at school but I didn’t find out about that until I was in my twenties.

In my humble opinion, much of what we are taught at school could and should be replaced with information that really matters in life. The kind of learning that keeps us well and understanding how the mind and body thrives. Wouldn’t that make sense?

New B12 courses
We know that education of vitamin B12 deficiency is vital for everyone. I have taught health professionals and lay people about B12 and in response to Anna’s email I have finally got my act together to run regular Zoom courses in understanding vitamin B12 deficiency both as a patient and as a practitioner.
To find out more, please visit our courses page.

Much love

Tracey x

If I’ve helped please consider buying me a coffee/leaving a virtual tip.
Doing this helps me to offer this free website to you and others around the world.
Thank you, I really do appreciate it.


  1. RKS Nair

    I think drs should make B12 and Vit D3 test regularly if they find child not having apettite, or behaviour change or disturbed sleep patters and irritability.

    As said most dr think B12deficiency is very common in patients if all age groups due to various causes and mostly it could be junk food, colas and high dose antibiotics.
    Vit.D in 90 percent because even people working in the sun still show vut. E3 deficiency and seen more commonly in the 15 to 50 yrs age groups. In males and females and i definitely think some ingredients in the food chain is interfering with the utilizability of B12 & Vut. E3.

    So it should become a routine testing practice by Drs.

  2. william

    It confirms what I have known for many years based on my own experience as a parent. Doctors know liitle about nutrition & turn their noses up at vitamins. Very little is taught in medical school. Only what the Big Pharma companies prescribe.
    I hope their baby thrives now this known.

    • Tracey Witty

      I agree William, comprehensive training of nutrition is absolutely the key, letting companies who sell drugs lead the show is dangerous. Thanks for taking the time to comment. x

  3. Adversity2stars

    Thank goodness this baby’s deficiency was finally found. It must have been quite an ordeal for the little one, Anna, her family, friends and day to day life.

    I really do hope babe thrives and it is the start of a real family life. It does show how invaluable your website and resources are Tracey.

    I totally agree, good nutrition and basic dietetics should be on school curriculums. Definitely in depth at medical school, nursing and midwifery schools, plus other allied health professionals such as physiotherapists and occupational therapists. (William, the influence of the big pharmaceuticals, I feel is ridiculous).

    As patients or advocates for loved ones, when giving practitioners literature, I strongly feel, it is worth saying,

    ‘Please may you use this as a case study and write a reflection on it for your Continuous Professional Development.’

    All of them have to provide evidence (a portfolio) to reapply for their registration or PIN number.

    Best wishes.


Submit a Comment

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.