If this advice were given by a garage we’d know they were kidding - but a similar instruction is given in the UK to too many B12 deficient patients regarding their treatment. NICE and BNF Guidelines advocate a maintenance dose for patients with neurological symptoms...
When you can’t remember where you live, or who loves you…..
Our poster boy Jasper has been showing the signs of his advancing years. He was a rescue so we can't be sure how exactly how old he is, but he's at least fifteen. His eyesight and hearing have been deteriorating for a while so we clap to get his attention. People...
UK B12 deficient patients, paltry 3 monthly maintenance dose of B12 injections is based on cash not care!
The question you will be asking of your GP after reading this is 'show me the proof that 3 monthly injections are all I need'. The biggest problem B12 deficient patients face once they've achieved a diagnosis is desperate under treatment. Our maintenance dose is...
When rich charities deliberately back the wrong horse, something fishy must be going on….
Do you donate to the Alzheimer's society? Have B12 injections and folate helped your declining memory like it did mine? Not all of us with B12 deficiency experience cognitive decline but it was my most terrifying symptom. Those of us who access frequent B12 injections...
B12 deficiency can strike at any age, it is not confined to women over 60
Signs & symptoms in infants and children (List supplied by Sally M Pacholok R.N & Dr Jeffrey Stuart co authors of 'What's wrong with my child?') • Developmental delay or regression • Apathy - Irritability • Hypotonia (decreased muscle tone) • Weakness •...
Go away and die quietly, we’re busy
It is rare that I am lost for words - however, I expect after reading this, you might be struggling too. The below text is a summary of a patient’s experience just last month. I am paraphrasing but the message is very clear. The quality of life of B12 deficient...
B12 deficiency at the heart of the matter
This little fella spent a long lime in hospital as a child following a diagnosis of Perthes disease (Legg-Calvé-Perthes disease). Perthes is a childhood hip disorder caused by a disruption of blood flow to the ball of the hip joint. By the time he was 30 years old he...
Understanding what it feels like to be B12 and folate deficient
Over the weekend I was ambushed by a sickness bug, I was in pain, exhausted and miserable with a screaming headache - however I knew it would pass and that I would be free of feeling like a rag doll in a matter of days. It occurred to me that what I was experiencing...
Dumb and dumber with NHS money to burn.
As usual, I want to say that I acknowledge there are some clinicians who treat B12 patients correctly, this sorry tale below only refers to those who don’t. See below another shocker of a letter sent to a B12 deficient patient whose doctor is perhaps hard of hearing...
The pernicious ignorance of B12 deficiency in patients with poor mental health.
Despite the general misconception that B12 deficiency only affects women over 60, this condition does not discriminate. It is those who train our health care professionals and consequently our health care professionals who do. The neuropsychiatric symptoms of B12...
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