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‘Please don’t trust me – I am a doctor with a fundamental lack of knowledge of B12 deficiency, sadly my ignorance will harm you!’
Unfortunately the letter below is typical of those sent out to B12 deficient patients, full of incorrect information. This shockingly ignorant doctor, who has spent a fair old time at medical school still hasn’t grasped the basics. He states that ‘The blood tests that...
Please stop treating vitamin B12 deficiency as the poor relation to pernicious anaemia, this discrimination can seriously harm patients!
Autoimmune pernicious anaemia (PA) is just one of many causes but it's clear that many doctors consider it to be the only serious cause of B12 deficiency and therefore the only one worth treating with B12 injections. This is due to lack of education on this subject...
An obvious history of neglect – please help us to buy injectible B12 OTC, many doctors cannot or will not help us!
‘Somataform autonomic dysfunction in the form of neurosis’ or longstanding B12 deficiency? Below you will see this patient's medical history is clearly affected by B12 deficiency and yet over 30 years on, still NO ONE will listen and treat her accordingly. You will...
East Lancashire NHS Trust – you win the trophy hands down, for dangerously low, lower reference level for serum B12 test, 110 – 914ng/L!
Just take a look at these results, which are being ignored by the GP (see previous post) and then have a gasp at that lower reference range, are you still standing? NO?.... neither is the patient. They remain exhausted with regular blackouts. What are you doing to...
When a doctor cannot see the wood for the trees – disaster is inevitable
Please note - I do know that some doctors know how to treat B12 deficiency and pernicious anaemia excellently, sometimes there is a lovely surprise when a member of Pat Kornic’s life saving support support group reports how well they are being treated by their doctor....
To help your loved ones understand…..An open letter written by Pat Kornic
The following is a draft letter written by Pat Kornic, which she has generously shared with us. This letter can be personalised for your own situation and given to family and friends, it explains what pernicious anaemia/B12 deficiency is and how it affects sufferers....
There are many faces of Vitamin B12 deficiency……….
Please click to download, print, tweet or share this poster Raising awareness - how YOU can help If viewed from the web address above this poster has dynamic links behind each image which lead to further information and journals for each age group....
Neurological symptoms in B12 deficiency are routinely ignored.
I do acknowledge that there are some of us with doctors who know exactly how to treat B12 deficiency, but evidence shows that we are not all that lucky. Most of us with this condition suffer neurological symptoms. Our problem is that many doctors don’t recognise our...
Dear Doctor, have you been giving vitamin B12 deficiency another name?
You could probably visit ANY street in the world and find B12 deficient residents. In twenty homes you may find eight people who are deficient, and this may be just two families, including the children of course. B12 deficiency is very common, however it is very...
The Ignorance of Vitamin B12 Deficiency in Children
B12 is tragically undiagnosed and misdiagnosed in children, for many doctors testing for this deficiency is not even on their radar. In the rare cases when it is tested, there’s every likelihood it won’t be diagnosed due to the dangerously low lab reference ranges in...
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